Updated: 29 min 20 sec ago
Sun, 07/25/2010 - 03:12
Most evenings, I read Little Fish and Mog a story together before I shovel them into bed for the night. And how it generally works is that I read the story to them both, then Little Fish takes the book and "reads" the story back to Mog again; lots of audio description about the pages of the book and a little bit of narration too, especially if there is a shouty dialogue about a naughty child or pet.br /br /Last night, the tables were turned. I dug out an old story cassette. Popped it into a tape recorder (ancient technology now!), plugged the recorder into a special latch box, plugged Mog's switch into the other end of that same box, and Mog read Little Fish a story instead.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-4793347982571411289?l=behindthechild.blogspot.com' alt='' //div
Fri, 07/23/2010 - 16:45
Today the first official day of our school holidays. Little Fish finished on Tuesday, Mog came home unwell on Monday and didn't manage the rest of the week, so I've had both girls at home for a few days anyway, but today was when the holidays were supposed to begin.br /br /Not a bad first day in some respects; nice weather, lunch out, civilised children, an afternoon in town and phone calls confirming delivery of new buggy on Monday and new supportive insert ready for collection. Of course I missed the cut off for collection by ten minutes, so will either have to scramble to collect it before our 9.15 appointment (at home) on Monday or else leave it until after the buggy has been delivered. Which would be a pain, since ideally I'd like the buggy to be set up to fit it.br /br /Oh, and the reason why we missed it and why we were in town? We were seeing the GP - Mog has decided to celebrate the start of the summer holidays with a chest infection.br /br /Chicken Pox last year; we are not missing New Wine again so she's got 8 days to get over it.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-5110484243494818205?l=behindthechild.blogspot.com' alt='' //div
Thu, 07/22/2010 - 15:11
Mog had some spasm again this morning.br /br /But she's trialling a new wheelchair with a dynamic back.br /object width="320" height="266" class="BLOG_video_class" id="BLOG_video-66a3da8016000dde" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"param name="movie" value="http://www.youtube.com/get_player"param name="bgcolor" value="#FFFFFF"param name="allowfullscreen" value="true"param name="flashvars" value="flvurl=http%3A%2F%2Fv1.nonxt2.googlevideo.com%2Fvideoplayback%3Fid%3D66a3da8016000dde%26itag%3D5%26app%3Dblogger%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1286035285%26sparams%3Did%252Citag%252Cip%252Cipbits%252Cexpire%26signature%3D32CF7A256E51F56D22F882523033DB6325F52B11.2AC171539EC775B83FE5654491E00D8F6FB907F1%26key%3Dck1amp;iurl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3D66a3da8016000dde%26offsetms%3D5000%26itag%3Dw160%26sigh%3DPnFQ0-JknTSo3kYbDU8yNxgKijQamp;autoplay=0amp;ps=blogger"embed src="http://www.youtube.com/get_player"width="320" height="266" bgcolor="#FFFFFF"flashvars="flvurl=http%3A%2F%2Fv1.nonxt2.googlevideo.com%2Fvideoplayback%3Fid%3D66a3da8016000dde%26itag%3D5%26app%3Dblogger%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1286035285%26sparams%3Did%252Citag%252Cip%252Cipbits%252Cexpire%26signature%3D32CF7A256E51F56D22F882523033DB6325F52B11.2AC171539EC775B83FE5654491E00D8F6FB907F1%26key%3Dck1iurl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3D66a3da8016000dde%26offsetms%3D5000%26itag%3Dw160%26sigh%3DPnFQ0-JknTSo3kYbDU8yNxgKijQautoplay=0ps=blogger"allowFullScreen="true" //objectbr /And the movement of the backrest absorbed her spasm, let it happen, and then brought her back down again. And the spasm came again, and the backrest let it happen, and the spasm reduced. And again. And again. And whilst Mog was not very comfortable because spasm is painful whatever, it's a big improvement on a href="http://behindthechild.blogspot.com/2010/07/shout.html"this/a.br /br /So the dynamic function is excellent. She can still use her switch, she can sit in the chair all day, and her feet seem to be much more comfortable on the foot plates which have been angled downwards to let her toes point. She's not moving her legs to accommodate her spasm; the backrest is letting her back take it instead.br /br /It's not perfect though. It's long and big and heavy. It isn't moulded, and Mog is not modular chair shaped. It is leaving marks on her back, she's tucking one arm inside the lateral support and that's rubbing too. The chest harness comes down and puts pressure on her gastrostomy, and the shoulder straps have rubbed her neck. The pommel is too wide and doesn't come smaller, the covers are only washable up to 30C, and I can't get the headrest to sit properly with her collar. And she definitely cannot sit in it without her collar; video aside she would very quickly get her neck wedged into that gap.br /br /Grateful to a href="http://www.jcmseating.co.uk/pages/triton.html"JCM/a for lending it out, and curious to know whether we can make it perfect. But very pleased with how well the dynamic side of things works for Mog.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-2727566215870289088?l=behindthechild.blogspot.com' alt='' //div
Wed, 07/21/2010 - 13:46
What does independence mean to you?br /br /For me, it's the power to make my own decisions, the freedom to make my own mistakes, and the knowledge that I am the one in control. True, I also happen to be an adult living in my own home, caring for my children, carving out for myself pretty much the life I chose to live. But it's that in control bit which is the most important.br /br /This morning, Mog slept. Our carer arrived, and Mog slept on. So our carer helped Little Fish. Little Fish is five years old. Your average five year old girl is probably mostly able to dress herself without much help from her parents. Little Fish needs a little more help than that. So our carer turned herself into LF's facilitator.br /br /I heard some words, a fair bit of discussion, and then lots of giggling. And Little Fish then turned up in the doorway dressed in a very fluffy fleecy winter all-in-one set of pyjamas. She'd sent the carer to the wardrobe, directed her to the correct shelf, instructed her on where to find underwear, and then picked the sleepysuit. And our carer, in her role as facilitator rather than overseer, allowed her to do that and simply helped insert legs and tweak zips. And Mog slept on.br /br /And then they went back to the bedroom because Little Fish decided that the other peoples in the world might point and laugh, and she then chose an entirely appropriate outfit for the day, from a memory of the clothes she knew she had in her wardrobe, and remembering to instruct the carer in bits and pieces which are slightly different to the average five year old. And Mog slept on.br /br /It might not be independence as most of the world sees it, but self-directed care; I'm all for that. Great.br /br /And then Mog woke up, and we went off to the wheelchair clinic to try out a dynamic chair. And we came home, and Mog wanted to see how her switch might work with the dynamic back.br /object width="320" height="266" class="BLOG_video_class" id="BLOG_video-e1d2397eccbc4883" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"param name="movie" value="http://www.youtube.com/get_player"param name="bgcolor" value="#FFFFFF"param name="allowfullscreen" value="true"param name="flashvars" value="flvurl=http%3A%2F%2Fv5.nonxt7.googlevideo.com%2Fvideoplayback%3Fid%3De1d2397eccbc4883%26itag%3D5%26app%3Dblogger%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1286035285%26sparams%3Did%252Citag%252Cip%252Cipbits%252Cexpire%26signature%3D115548E9D347406FDF02DB428C7681CDF86B61C0.3BE5B6B952A383A84AF8F25180E1895D404AB9DD%26key%3Dck1amp;iurl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3De1d2397eccbc4883%26offsetms%3D5000%26itag%3Dw160%26sigh%3DnzPrgquWwj6U1wxnFsvnzzT6mmIamp;autoplay=0amp;ps=blogger"embed src="http://www.youtube.com/get_player"width="320" height="266" bgcolor="#FFFFFF"flashvars="flvurl=http%3A%2F%2Fv5.nonxt7.googlevideo.com%2Fvideoplayback%3Fid%3De1d2397eccbc4883%26itag%3D5%26app%3Dblogger%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1286035285%26sparams%3Did%252Citag%252Cip%252Cipbits%252Cexpire%26signature%3D115548E9D347406FDF02DB428C7681CDF86B61C0.3BE5B6B952A383A84AF8F25180E1895D404AB9DD%26key%3Dck1iurl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3De1d2397eccbc4883%26offsetms%3D5000%26itag%3Dw160%26sigh%3DnzPrgquWwj6U1wxnFsvnzzT6mmIautoplay=0ps=blogger"allowFullScreen="true" //objectbr /And although what you might think you're seeing is a girl having fun and messing around with bubbles, what you're actually seeing is a girl in control of her own environment. Choosing when to blast herself with a cooling drip of bubbles, and when to stop. It's a different kind of independence. But it's no less exciting.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-3969556419591179496?l=behindthechild.blogspot.com' alt='' //div
Tue, 07/20/2010 - 03:04
style type="text/css" !-- @page { margin: 2cm } P { margin-bottom: 0.21cm } -- /style p style="margin-bottom: 0cm;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"When my daughter started school, I worried; will they like her? Will they understand her? Will they know what makes her tick and see past all her wonky bits? /span/span /p p style="margin-bottom: 0cm;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"iI go school, I 'ave friends? Who look after me? /i/span/span /p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"I worried about all her medical needs, about her physical needs, about how everything she needed to have done would fit into the school day and yet leave time for learning and having fun. /span/span /p p style="margin-bottom: 0cm;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"iI eat my dinner, I be doing lots of playing./i/span/span/p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"I wondered what the other children would think of her, how they would react, whether they would manage to include her and her wheelchair in their games and activities. /span/span /p p style="margin-bottom: 0cm;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"iAll my children like me. /i/span/span /p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"I wondered if the doubters might be right, and if having 1:1 might be smothering and hold my child back from becoming more independent and well-rounded, and having more normal childhood debates./span/span/p p style="margin-bottom: 0cm;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"iHolly and me, we, we not 'lowed to play together acos we are getting in trouble. /i/span/span /p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"I thought perhaps my daughter's energy levels would not allow her to attend school full time. /span/span /p p style="margin-bottom: 0cm;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"iOooohhh, Mummy, why I not go school on Saturdays?/i/span/span/p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"I thought my daughter's anxieties would make it difficult for her to be away from me for the whole day./span/span/p p style="margin-bottom: 0cm;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"iBye, Mummy, I see you later, KISS ME!/i/span/span/p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"I saw my precious little girl growing up and starting school. /span/span /p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"You saw potential. /span/span /p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"You saw a child, a child with an interesting collection of challenges, true, but a small girl first. You made room for her, welcomed her, nurtured her and educated her. You celebrated her successes and helped her to see all the things she could do for herself. You gave her confidence./span/span/p p style="margin-bottom: 0cm; font-style: normal;"span style="font-family:Arial,sans-serif;"span style="font-size:130%;"Thank you. /span/span /pdiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-3439381177415058282?l=behindthechild.blogspot.com' alt='' //div
Mon, 07/19/2010 - 09:56
Back in February, we had an a href="http://behindthechild.blogspot.com/2010/02/pumps.html"epic pump saga/a. Two broken pumps, three broken replacements, followed finally by two working pumps.br /br /You apologised. You said you didn't know how it could possibly have happened. You said you would take steps to make sure it would never happen again. You set your nurse onto us; she also apologised and said she would look into it.br /br /I didn't hear any more from you, but I assumed you might have actually been looking into quality control as well as the warehouse storage issues.br /br /Last week, Mog's pump packed up. The new one, from February. It screamed its screamy alarm; school reset it, it settled for a bit, then screamed its screamy alarm again. And had in the meantime mysteriously reset itself to feed not 120mls/hour but 19mls/hour. Cue one mildly dehydrated child and one very long night waiting for it to catch up.br /br /I phoned you, to ask for a replacement. And you told me you had no replacements in stock, and that I would need to just make do. I explained this wouldn't work, and you reluctantly agreed to send out a replacement not within the six hours you promise, but the next day. Thankfully, Mog was able to borrow school's pump for the rest of the night.br /br /Today, three days after the replacement pump arrived, I have had a phone call from her class. Mog is on a school trip today. And the pump has failed. One big screaming F-26 error, one pump which has reset itself to its own preferred settings, one class trip disturbed and one child once again not getting the nutrition and hydration she is supposed to receive. She can't borrow the school spare this time, because she is not at school.br /br /I will phone you again when she gets back from school, but really, what confidence can you give me that this next replacement pump will actually be working as it should?br /br /You don't consider the fact that the pump will neither deliver the correct dose nor alarm to indicate an error if the tube gets a kink to be a fault. Yet you designed the tube and the backpack, and designed the tube to be too long to sit in the backpack without kinking. You don't consider it to be a problem that the pump will not always recognise the fact that it is empty, and will, on occasion, pump air into the stomach for hours on end if it has been knocked over. Your suggested solution is to set a dose; this does not help when the dose is 1Litre and the pump is knocked over at the start of that time. And you consider a wide variation in dose actually delivered to be perfectly acceptable - I put 500mls measured dose into your pump, sometimes your pump tells me that was only 450mls (which means my daughter has had her food too fast, an issue when it is running at a very slow rate), and sometimes it tells me she has had 500mls when there is still 100mls left in the bottle. With a 700 calorie diet, delivered with 700mls feed, that's quite a variation in what she actually receives over the course of the day.br /br /You have a policy which requires erroneously delivered supplies to be incinerated, even if these are in sterile bags in sealed boxes and have simply made a journey from your warehouse to my front door and back via courier. You insist I call you on an 0800 number (which is not free from my mobile phone) and seem to think using the pump is an optional extra rather than a necessity. I would love that to be true.br /br /To be fair, you did send us out a very nice new rucksack to replace the one with the broken zip, and it arrived the following day with no hassle at all. Thank you for that. Could you please fix the other problems though, and provide us with a pump which is safe, reliable, and accurate? Is that really too much to ask?br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-7103386799713611318?l=behindthechild.blogspot.com' alt='' //div
Fri, 07/16/2010 - 03:03
Your prayers please. For one small boy who is currently in a hospital far from home, with his family but without much of an idea about what is wrong. Something is obviously very not right but no answers yet.br /br /And for one bigger boy, one young man in fact, currently fighting hard against an overwhelming pneumonia. And for his family who were told he was doing better, and now find he is doing much worse.br /br /Both boys have multiple disabilities, but these illnesses are not normal for either of them.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-1352280525554703331?l=behindthechild.blogspot.com' alt='' //div
Thu, 07/15/2010 - 17:06
I don't know what you will be having for lunch when you get home after the church holiday club mornings at the end of August. I do promise you that I will always have food and you will always have something though.br /br /I also don't know how many people you'll be able to invite to your Birthday Party, nor whether you will actually decide you want one. Your Birthday is not until March, could we leave thinking about it until after Christmas please?br /br /We aren't going to France for the summer holidays. Please stop telling people we are.br /br /"Britain is an island" is a difficult concept to grasp. I get that. And I realise I should probably have left the explanation at "Because the buggy is in a different country a long way away and will take a while to get here." No, the boat won't come sailing up our drive. It won't squash the cars because it will stop when it runs out of water. And the buggy will come off the boat and go onto the lorry. No, I don't know what colour lorry. And I don't know when. And it won't be tonight. And it won't be tomorrow. And yes, I know it's nearly the end of term and the man did say it would be here by the holidays, but it doesn't look likely now. I don't have the answers, sorry. No, the lorry won't squash our house. The buggy will come off the lorry and go in a smaller van. No, I don't know what colour. And no, it won't crash. Please stop fretting.br /br /You cannot put cream on your right elbow using your right thumb and index finger. I'm not going to argue with you - try it and see but you won't succeed. Please either let me do it or take some with your left hand.br /br /I haven't read you a story yet because you haven't stopped asking me questions long enough for me to ask you what you want to read. And now it's bedtime strike and I still haven't read you a story because I can't answer another one of your questions without my head exploding. Please go to sleep/strike.br /br /Goodnight, little girl, I love you, see you in the morning. strike But please, not until the morning. Argh! /strikebr /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-2760375253009348609?l=behindthechild.blogspot.com' alt='' //div
Wed, 07/14/2010 - 08:32
We increase Mog's Tizanidine today. A morning dose added. She fell asleep. I worried. I sent her to school anyway, as she was having a big communication/switch access/SLT meeting. Oh, and a wheelchair appointment to sort out a bigger footplate.br /br /One sleepy Mog probably better than one stiff and spasmy Mog, but I worried again about how useful the switch access appointment would be if she stayed fast asleep throughout it.br /br /I shouldn't have worried!br /object width="320" height="266" class="BLOG_video_class" id="BLOG_video-fe2a4154134a5687" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"param name="movie" value="http://www.youtube.com/get_player"param name="bgcolor" value="#FFFFFF"param name="allowfullscreen" value="true"param name="flashvars" value="flvurl=http%3A%2F%2Fv1.nonxt2.googlevideo.com%2Fvideoplayback%3Fid%3Dfe2a4154134a5687%26itag%3D5%26app%3Dblogger%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1285075885%26sparams%3Did%252Citag%252Cip%252Cipbits%252Cexpire%26signature%3D7E84F62AEF8C830D1F9AD23766B54F6DDB543DFD.43043E11A4ACFC7706153240490D1598018EAAD9%26key%3Dck1amp;iurl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3Dfe2a4154134a5687%26offsetms%3D5000%26itag%3Dw160%26sigh%3DAKn-M3WDIDADZloBuA8UGXBAoCMamp;autoplay=0amp;ps=blogger"embed src="http://www.youtube.com/get_player"width="320" height="266" bgcolor="#FFFFFF"flashvars="flvurl=http%3A%2F%2Fv1.nonxt2.googlevideo.com%2Fvideoplayback%3Fid%3Dfe2a4154134a5687%26itag%3D5%26app%3Dblogger%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1285075885%26sparams%3Did%252Citag%252Cip%252Cipbits%252Cexpire%26signature%3D7E84F62AEF8C830D1F9AD23766B54F6DDB543DFD.43043E11A4ACFC7706153240490D1598018EAAD9%26key%3Dck1iurl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3Dfe2a4154134a5687%26offsetms%3D5000%26itag%3Dw160%26sigh%3DAKn-M3WDIDADZloBuA8UGXBAoCMautoplay=0ps=blogger"allowFullScreen="true" //objectbr /br /We now have a Toggle Switch and mount on loan for the summer, and I must dig out our old Power Link box. I'm not sure I can replicate the music, but I'm sure we'll find something she enjoys just as much!br /br /I've also got to get to grips with Power Point as apparently she'll be able to use this switch to tell stories. Anyone fancy coming over for a tutorial?br /br /Tiabr /br /ps - one morning dose of Tizanidine and we can get her arms up over her head, her fists have unclenched, and she's sitting fully upright in her wheelchair. Past users; does this effect last or is it temporary?div class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-1176081132566717497?l=behindthechild.blogspot.com' alt='' //div
Tue, 07/13/2010 - 19:28
Being a Brownie means being responsible.br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://3.bp.blogspot.com/_X21YCywhQVs/TDzoloverEI/AAAAAAAAD1g/W8FT_aD-Wf8/s1600/IMG_2409.jpg"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://3.bp.blogspot.com/_X21YCywhQVs/TDzoloverEI/AAAAAAAAD1g/W8FT_aD-Wf8/s320/IMG_2409.jpg" alt="" id="BLOGGER_PHOTO_ID_5493521378774527042" border="0" //aAnd if you can't Lend A Hand you can still do a good turn and take your own turn at carrying the flag for a Promise Ceremony.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-2294367986452095152?l=behindthechild.blogspot.com' alt='' //div
Mon, 07/12/2010 - 14:14
What's this hiding under Auntie Margaret's mixing bowl?br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDtNvhAc4uI/AAAAAAAAD1I/DTtryebzS4g/s1600/IMG_2400.jpg"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDtNvhAc4uI/AAAAAAAAD1I/DTtryebzS4g/s320/IMG_2400.jpg" alt="" id="BLOGGER_PHOTO_ID_5493069649217905378" border="0" //aA generous gift from the Grolly-Beast.br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://3.bp.blogspot.com/_X21YCywhQVs/TDtNwH-BAsI/AAAAAAAAD1Q/1KrAwlggppM/s1600/IMG_2397.jpg"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://3.bp.blogspot.com/_X21YCywhQVs/TDtNwH-BAsI/AAAAAAAAD1Q/1KrAwlggppM/s320/IMG_2397.jpg" alt="" id="BLOGGER_PHOTO_ID_5493069659676672706" border="0" //aI think I may actually prefer beheaded rats to live toads. Not something I'd particularly considered having to rank before. And she looks so innocent too:br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDtOya816dI/AAAAAAAAD1Y/1bPKJeogIDQ/s1600/IMG_2394.jpg"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDtOya816dI/AAAAAAAAD1Y/1bPKJeogIDQ/s320/IMG_2394.jpg" alt="" id="BLOGGER_PHOTO_ID_5493070798643390930" border="0" //aIn other news; Mog's preferred position.br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://2.bp.blogspot.com/_X21YCywhQVs/TDtNvUODViI/AAAAAAAAD1A/Ms87HfUrHXQ/s1600/IMG_2401.jpg"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://2.bp.blogspot.com/_X21YCywhQVs/TDtNvUODViI/AAAAAAAAD1A/Ms87HfUrHXQ/s320/IMG_2401.jpg" alt="" id="BLOGGER_PHOTO_ID_5493069645785290274" border="0" //aAnd no, her hand isn't mangled under the settee; that's just how it's fixed these days.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-4357457617316515787?l=behindthechild.blogspot.com' alt='' //div
Sun, 07/11/2010 - 15:30
What works, sort of:br /ullilying flat on the floor with the freedom to bend into whatever shape necessary./lilibeing propped to allow some bending but not a complete pretzeling./liliNorah Jones, Matt Redman, Joseph and the Amazing Technicolour Dreamcoat./lilibeing held and rocked and hummed to./lilihaving wrists and ankles rubbed./lililying "bums up" across my lap having her back patted./lilihaving enough time for the meds to kick in and then to take it very slowly getting dressed./lilibeing lifted instead of hoisted./liliround the clock pain relief and diazepam, with a side order of chloral hydrate./lililying on a duvet in the flowerbed (the only bit of the garden with deep shade)./lililying in bed with a fan./liligoing out to see anyone who might be able to help (this seems to produce a big relaxation, just long enough to make me look a completely overprotective fool). /lilibeing vented more often than usual.br //li/ulWhat does not work:br /ullilying flat on the floor with the freedom to bend into whatever shape necessary./lilibeing propped to allow some bending but not a complete pretzeling./liliNorah Jones, Matt Redman, Joseph and the Amazing Technicolour Dreamcoat./lilibeing held and rocked and hummed to./lilihaving wrists and ankles rubbed./lililying "bums up" across my lap having her back patted./lilihaving enough time for the meds to kick in and then to take it very slowly getting dressed./lilibeing lifted instead of hoisted./liliround the clock pain relief and diazepam, with a side order of chloral hydrate./lililying in bed with a fan./lilibeing vented.br //li/ulNotice any similarities there? Which seems to leave me with leaving her in the flowerbed. And whilst that's tempting I'm not sure it's a long term solution. And it's supposed to rain tonight, which seems a little harsh.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-6305418744095283140?l=behindthechild.blogspot.com' alt='' //div
Sat, 07/10/2010 - 17:32
I recommend raspberries. Buy half a dozen canes, poke them into holes in the ground, and then enjoy a sprinkling of raspberries for breakfast every day for several weeks in the summer. Chop them down when they've finished fruiting, and watch them grow again the next year. Until finally one day you manage to collect more than just a sprinkling. a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://1.bp.blogspot.com/_X21YCywhQVs/TDjZLpUgFbI/AAAAAAAAD04/2BmBHUq2LF0/s1600/IMG_2393.jpg"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://1.bp.blogspot.com/_X21YCywhQVs/TDjZLpUgFbI/AAAAAAAAD04/2BmBHUq2LF0/s320/IMG_2393.jpg" alt="" id="BLOGGER_PHOTO_ID_5492378539671950770" border="0" //aSix whole juicy ounces! Finally, a picking too large for just my hands.br /br /So, what to do with them? Not really enough to freeze down, not enough to share around, not enough for jam or a crumble.br /br /And every recipe I can find suggests pairing them with that most evil of pretend foods, white chocolate.br /br /Until I decided to search through The Pioneer Woman's a href="http://thepioneerwoman.com/tasty-kitchen/recipes/desserts/cheesecake-brownie/"Tasty Kitchen/a and came across these rather delicious-sounding Cheesecake Brownies.br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDjZLOPpm5I/AAAAAAAAD0w/AiEmvfg-umA/s1600/IMG_2395.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDjZLOPpm5I/AAAAAAAAD0w/AiEmvfg-umA/s320/IMG_2395.JPG" alt="" id="BLOGGER_PHOTO_ID_5492378532403846034" border="0" //aLooking good!br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-1007132209389404606?l=behindthechild.blogspot.com' alt='' //div
Fri, 07/09/2010 - 17:22
So it turns out the tizanidine is not a miracle cure. And for the last few days we have either had thisbr /object width="320" height="266" class="BLOG_video_class" id="BLOG_video-cd94699a30061f5e" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"param name="movie" value="http://www.youtube.com/get_player"param name="bgcolor" value="#FFFFFF"param name="allowfullscreen" value="true"param name="flashvars" value="flvurl=http%3A%2F%2Fv15.nonxt6.googlevideo.com%2Fvideoplayback%3Fid%3Dcd94699a30061f5e%26itag%3D5%26app%3Dblogger%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1284132687%26sparams%3Did%252Citag%252Cip%252Cipbits%252Cexpire%26signature%3D76F9F72ED0B081DFD89948BB1D9CEA55D5B6B625.280AB0E980917453F08D8E8CDB36338CFD32329A%26key%3Dck1amp;iurl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3Dcd94699a30061f5e%26offsetms%3D5000%26itag%3Dw160%26sigh%3Dg-UwNXc0aurFMIZQsCgHIq6MMXUamp;autoplay=0amp;ps=blogger"embed src="http://www.youtube.com/get_player"width="320" height="266" bgcolor="#FFFFFF"flashvars="flvurl=http%3A%2F%2Fv15.nonxt6.googlevideo.com%2Fvideoplayback%3Fid%3Dcd94699a30061f5e%26itag%3D5%26app%3Dblogger%26ip%3D0.0.0.0%26ipbits%3D0%26expire%3D1284132687%26sparams%3Did%252Citag%252Cip%252Cipbits%252Cexpire%26signature%3D76F9F72ED0B081DFD89948BB1D9CEA55D5B6B625.280AB0E980917453F08D8E8CDB36338CFD32329A%26key%3Dck1iurl=http%3A%2F%2Fvideo.google.com%2FThumbnailServer2%3Fapp%3Dblogger%26contentid%3Dcd94699a30061f5e%26offsetms%3D5000%26itag%3Dw160%26sigh%3Dg-UwNXc0aurFMIZQsCgHIq6MMXUautoplay=0ps=blogger"allowFullScreen="true" //objectbr /Or thisbr /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDeFbBjKaAI/AAAAAAAAD0o/Db8kDkPisi4/s1600/IMG_2391.jpg"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDeFbBjKaAI/AAAAAAAAD0o/Db8kDkPisi4/s320/IMG_2391.jpg" alt="" id="BLOGGER_PHOTO_ID_5492004969920489474" border="0" //aAnd very little inbetween.br /br /Went to the GP today to rule out anything obvious and her ears are clear, her chest is sounding beautiful, and there's nothing hard where things ought to be soft. I suppose it's a good thing she doesn't have an ear infection, but it would have been nice to know this had a temporary and fixable with antibiotics kind of a cause.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-187301795540461969?l=behindthechild.blogspot.com' alt='' //div
Thu, 07/08/2010 - 08:06
Start by going to school, and building up your excitement.br /br /Come home, pack a lunch, and head off in a friend's car. Get Mummy to check that friend is driving to the National Indoor Arena, and not the National Exhibition Centre (both in the same city)! Arrive a href="http://www.gbwba.org.uk/gbwba/index.cfm"here/aa onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://1.bp.blogspot.com/_X21YCywhQVs/TDWzK9ragyI/AAAAAAAAD0g/dlzo03PZtW8/s1600/CIMG3165.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://1.bp.blogspot.com/_X21YCywhQVs/TDWzK9ragyI/AAAAAAAAD0g/dlzo03PZtW8/s320/CIMG3165.JPG" alt="" id="BLOGGER_PHOTO_ID_5491492321584907042" border="0" //aAnd pick up ringside seatsbr /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://1.bp.blogspot.com/_X21YCywhQVs/TDWzKiyT1_I/AAAAAAAAD0Y/P-A2w5yaszg/s1600/CIMG3167.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://1.bp.blogspot.com/_X21YCywhQVs/TDWzKiyT1_I/AAAAAAAAD0Y/P-A2w5yaszg/s320/CIMG3167.JPG" alt="" id="BLOGGER_PHOTO_ID_5491492314366072818" border="0" //aReady for the opening ceremonybr /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://3.bp.blogspot.com/_X21YCywhQVs/TDWzJ5RkDMI/AAAAAAAAD0Q/asckSK-jDno/s1600/CIMG3168.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://3.bp.blogspot.com/_X21YCywhQVs/TDWzJ5RkDMI/AAAAAAAAD0Q/asckSK-jDno/s320/CIMG3168.JPG" alt="" id="BLOGGER_PHOTO_ID_5491492303222869186" border="0" //aAnd the tactics talkbr /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDWyeQxfJFI/AAAAAAAAD0I/VsQNQg1s-rA/s1600/CIMG3173.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDWyeQxfJFI/AAAAAAAAD0I/VsQNQg1s-rA/s320/CIMG3173.JPG" alt="" id="BLOGGER_PHOTO_ID_5491491553616536658" border="0" //aAnd the Game!br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://3.bp.blogspot.com/_X21YCywhQVs/TDWyd5fkMBI/AAAAAAAAD0A/Vfxqj5WSRRI/s1600/CIMG3190.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://3.bp.blogspot.com/_X21YCywhQVs/TDWyd5fkMBI/AAAAAAAAD0A/Vfxqj5WSRRI/s320/CIMG3190.JPG" alt="" id="BLOGGER_PHOTO_ID_5491491547367354386" border="0" //aHang round afterwards and have a race with one of the team membersbr /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://3.bp.blogspot.com/_X21YCywhQVs/TDWyda4elEI/AAAAAAAADz4/yxGN3y6WlEM/s1600/CIMG3194.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://3.bp.blogspot.com/_X21YCywhQVs/TDWyda4elEI/AAAAAAAADz4/yxGN3y6WlEM/s320/CIMG3194.JPG" alt="" id="BLOGGER_PHOTO_ID_5491491539150345282" border="0" //aPose with anotherbr /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDWydInEp_I/AAAAAAAADzw/-ub2PewUohI/s1600/CIMG3191.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDWydInEp_I/AAAAAAAADzw/-ub2PewUohI/s320/CIMG3191.JPG" alt="" id="BLOGGER_PHOTO_ID_5491491534245505010" border="0" //aAnd with your racing companionbr /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://2.bp.blogspot.com/_X21YCywhQVs/TDWycveQr5I/AAAAAAAADzo/XFFt8Qbf334/s1600/CIMG3198.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://2.bp.blogspot.com/_X21YCywhQVs/TDWycveQr5I/AAAAAAAADzo/XFFt8Qbf334/s320/CIMG3198.JPG" alt="" id="BLOGGER_PHOTO_ID_5491491527497658258" border="0" //aAnd then load back up into your friend's car, and drive home, bubbling with excitement.br /br /Sleep sweetly as your friend and Mummy spend hours trying to work out how to get photos from friend's camera onto Mummy's computer without a cable or wireless facilities.*br /br /A good daybr /Tiabr /br /*Answer: eventually, after too much fiddling, hook friend's laptop and computer up with the ethernet cable from the new modem, and hope for the best. Seems to have worked!div class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-9112187646444963148?l=behindthechild.blogspot.com' alt='' //div
Wed, 07/07/2010 - 12:25
My friend decided I needed flowers.br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDSdJegsEqI/AAAAAAAADzY/Wpl2j9x9QdY/s1600/IMG_2388.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDSdJegsEqI/AAAAAAAADzY/Wpl2j9x9QdY/s320/IMG_2388.JPG" alt="" id="BLOGGER_PHOTO_ID_5491186631806030498" border="0" //aPretty flowers.br /br /Very, very pretty flowers!br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDSdI0eSi7I/AAAAAAAADzQ/pLz90-XzBFk/s1600/IMG_2387.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDSdI0eSi7I/AAAAAAAADzQ/pLz90-XzBFk/s320/IMG_2387.JPG" alt="" id="BLOGGER_PHOTO_ID_5491186620521679794" border="0" //aAnd then, because I didn't collect them from the post office (thought they were something else), and so didn't know about them, and so didn't mention them to her, she thought she hadn't ordered them properly.br /br /And so she ordered another delivery.br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDSdJmGL4FI/AAAAAAAADzg/-t-GUpOCdiw/s1600/IMG_2389.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDSdJmGL4FI/AAAAAAAADzg/-t-GUpOCdiw/s320/IMG_2389.JPG" alt="" id="BLOGGER_PHOTO_ID_5491186633842352210" border="0" //aAnd now I have lots and lots and lots of flowers!br /br /Moral of the story would appear to be, delay giving thanks and you'll get something better. No, wait, that's not a moral. Umm, be disorganised and good things will happen? Not sure that's right either. How about, I'm really happy that I have friends who, despite knowing how disorganised I am, still assume that any error is probably down to them and not to me. And I love having friends who are as disorganised as I am!br /a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://4.bp.blogspot.com/_X21YCywhQVs/TDSdI0eSi7I/AAAAAAAADzQ/pLz90-XzBFk/s1600/IMG_2387.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://4.bp.blogspot.com/_X21YCywhQVs/TDSdI0eSi7I/AAAAAAAADzQ/pLz90-XzBFk/s320/IMG_2387.JPG" alt="" id="BLOGGER_PHOTO_ID_5491186620521679794" border="0" //aIn other news, a teaser from Little Fish's day; here she is in her front row seat waiting for the game to begin. She is apparently having a wonderful time. My friend who has taken her is not having such a great time; someone has stolen her wallet. a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://2.bp.blogspot.com/_X21YCywhQVs/TDSdITQSJxI/AAAAAAAADzI/OvqfJfb23So/s1600/photo.JPG"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="http://2.bp.blogspot.com/_X21YCywhQVs/TDSdITQSJxI/AAAAAAAADzI/OvqfJfb23So/s320/photo.JPG" alt="" id="BLOGGER_PHOTO_ID_5491186611604563730" border="0" //adiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-3425433647582719444?l=behindthechild.blogspot.com' alt='' //div
Tue, 07/06/2010 - 17:45
Flowers in the post today from a friend. A friend I first met online, one of those friendships we sre supposed to warn our children against. But a friend who is a powerful prayer warrior, even when she's drowning in the needs of her own immediate and extended family. And a friend who knows just when large bunches of freesia would be most welcome.br /br /The postie handing them over last seen playing something large and brassy at the front of church.br /br /Later, collecting Mog from school, I check up on our fish, all looking very happy. Home life spilling out into school. And school connecting with home with an invitation to join the class on an end of term outing.br /br /A church friend meeting us to meet Little Fish's teacher; she's offered to help us out with my cloning project until the end of term. I can sleep again, not having to worry about which girl will be in least trouble for missing the end of the school day.br /br /A conversation with another 'net friend turned real life friend, who is taking Little Fish on her Big Day Out tomorrow.br /br /And then a giggly Mog to Brownies, to my old Brownie Pack, where one of the Guiders is the daughter of Mog's old Nursery Nurse, where one of the Brownies is the daughter of Little Fish's TA, and where another is the daughter of the man who owns the clothes shop in town where they aren't afraid to tell me what not to buy as well as what might work. Church and schools and home life, past and present all mixing together.br /br /And a contented Little Fish left in Grannie's excellent hands, reading story books vaguely remembered from my own childhood and doing puzzles with story lines which would have appealed to Goldie. Cuddles and companionship, and a multi-generational back up system in place to enable Mog to go to the place where she is most fully included in the wider world.br /br /And then of course Mog decided to fit, not badly enough to need any kind of intervention but too much to be able to stay at Brownies. So, with a letter tucked into her slipper about the need to bring 28 snake sweets next week, we slunk home.br /br /And we sat and waited a while, and then Mog's carer who was Goldie's carer came to put her in bed. And we talked about our old house, and her new house, and found new connections over television programmes.br /br /A different friend, a real life local friend, emails a photo of her son on their holiday.br /br /I sit here now and I can hear the faint pitterpatterings of the dog who lives upstairs, and an echo from a neighbour's television set. Somewhere under furniture in this flat, three cats are hiding (they seem to be of the opinion that if I can reach them I may haul them off to the vet to have body parts removed). I may be the only adult in this flat, but I'm certainly not isolated. And to the left of this page, a little bouncy icon indicates there are less local friends staring at their version of this screen, ready for a chat and a catch up and a communal cup of coffee (or at least one we both make and then drink at the same time). But, the button on the right shows me that it's bedtime and that our next carer will be arriving all too soon in the morning. So I'll resist the urge to go visiting, and go and find a duvet instead.br /br /And I've taken so long to write this, I kind of forget what the point of it was. But I think it was probably something to do with how it's quite nice really.br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-4786528745586932555?l=behindthechild.blogspot.com' alt='' //div
Mon, 07/05/2010 - 14:41
a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://1.bp.blogspot.com/_X21YCywhQVs/TDIZZaizJcI/AAAAAAAADzA/aGvANDqqmOg/s1600/IMG_2385.jpg"img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 240px; height: 320px;" src="http://1.bp.blogspot.com/_X21YCywhQVs/TDIZZaizJcI/AAAAAAAADzA/aGvANDqqmOg/s320/IMG_2385.jpg" alt="" id="BLOGGER_PHOTO_ID_5490478820130760130" border="0" //a399 children sitting in rows on the field, and 1 sitting in her wheelchair somewhere in the middle, frantically waving at Mum. One very happy, if very noticeable, child in amongst the rest, doing her best alongside all the others. But one small girl who was very upset all evening, ostensibly about the lack of ham in her spaghetti, but I'm not entirely convinced.br /br /Happily, she's off on a special trip later this week somewhere which might just show her that wheelchair users can be pretty awesomely good at sport too.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-9007283943080915402?l=behindthechild.blogspot.com' alt='' //div
Sun, 07/04/2010 - 15:54
A very very quiet whisper...br /br /I think the Tizanidine might be working. No diazepam needed at all today. Only one dose of ibuprofen. No paracetamol. No spasm. No pain. No misery, even when being moved. Just one relaxed, sleepy, smily little girl.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-2961156367441582240?l=behindthechild.blogspot.com' alt='' //div
Sat, 07/03/2010 - 17:22
A nice day today. Little Fish went to a fun day with Grannie and Grandad; Mog and I stayed on Grolly Watch. And since Grolly curled up in a quiet corner and made it very clear she wanted to be left alone, we had a nice peaceful time whilst LF burned off some of her energy. Great.br /br /Little Fish scored a free packed lunch at the Fun Day, so she munched her way through that and then decided she'd like a nice soak in the baby bath again. So she lay back in the bath, legs overhanging one end, arms folded up under her head. And said "Mummy, I likin' this. We are 'alaxin today. I are 'alaxin' without the other peoples. We can 'alax together."br /br /My perfect Saturday I think, 'Alaxin' peacefully with a cool breeze blowing through and just being ourselves.br /br /Tiadiv class="blogger-post-footer"img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/2411253170651203836-4823779450606464670?l=behindthechild.blogspot.com' alt='' //div